Thought that the blog needed a bit of an update so forgive me for playing around a bit with it these days. In the meantime have a look at this video, isn't it wonderful?
31 October 2010
30 October 2010
Still fighting strong
Hello there, yes we are still here, are you? Well meet Joshua, who is now 8 months actual, 5 months corrected. He finally left NICU on the 5th of August, a little more than 5 momths after being born, and came straight home. He has since been readmitted twice with bronchiolitis, each time for a week, and we have just gone through another cold, luckily he escaped hospital this time round.
The fact that he is home doesn't mean that all complications from his prematurity have been resolved, far from. He has Chronic Lung Disorder and is still oxygen-dependent, but hopefully his lungs will grow stronger and he will eventually not need the extra help anymore. He never developed a proper sucking/swallowing reflex and is therefore still fed by NG-tube which is very very uncomfortable and causes many problems for him and us. Getting him off the tube will be our objective over the next months, but it will be a hard task. Worst case scenario he will have a g-tube where he is fed directly into his stomach. The fact that he has spent so much time in hospital also means that his development is quite delayed, but hopefully he will eventually catch up. Usually for babies with lung problems the first year really is the hardest, especially the first winter when the flu season starts. All we can do is try and keep him away from possible infections, but when you have an older toddler who goes to pre-school that is quite hard.
But despite all the the problems and worries we are so glad to have him home and take each day as it comes.
The fact that he is home doesn't mean that all complications from his prematurity have been resolved, far from. He has Chronic Lung Disorder and is still oxygen-dependent, but hopefully his lungs will grow stronger and he will eventually not need the extra help anymore. He never developed a proper sucking/swallowing reflex and is therefore still fed by NG-tube which is very very uncomfortable and causes many problems for him and us. Getting him off the tube will be our objective over the next months, but it will be a hard task. Worst case scenario he will have a g-tube where he is fed directly into his stomach. The fact that he has spent so much time in hospital also means that his development is quite delayed, but hopefully he will eventually catch up. Usually for babies with lung problems the first year really is the hardest, especially the first winter when the flu season starts. All we can do is try and keep him away from possible infections, but when you have an older toddler who goes to pre-school that is quite hard.
But despite all the the problems and worries we are so glad to have him home and take each day as it comes.
Hello world!
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